Name(s) for the Storm

& finally, everything might actually make sense

For years I’ve been drifting,

lost in the haze,

Through symptoms that twisted

and tangled my days.

Pain that would whisper,

then scream in my spine,

A heart racing wildly

with no clear design.

Doctors would listen,

then send me away,

With shrugs or suggestions

that didn’t quite stay.

“Maybe it’s nothing,” or

“Try to relax,”

While my body kept fracturing

like a glass full of cracks.

But today, oh today,

the story has possibly changed,

A doctor who saw me,

not strange or deranged.

She pieced through the puzzle,

the fragments,

the clues,

And named all the battles

I’d struggled to lose.

Hypermobility, twisting me thin,

Ehlers-Danlos, the war from within.

POTS, like a thief,

making gravity fight,

A tangled-up web,

but now, there’s a light.

This isn’t a cure, nor a neat little bow,

But answers mean more

than the world,

they mean hope.

New paths to explore,

a way to move free,

A map for the chaos

that’s lived within me.

So I left her office,

my heart feeling wide,

With knowledge as armor,

and some hope at my side.

The road may be rocky,

but now, I can see,

For the first time in years,

I might finally be free.